Sorry to all of you who get RSS feeds. You're gonna get at least two of these.
I've lost my ever-lovin' mind. The drugs have been brutal. The changes have been horrible. The 4 people I've become have been unkind to Ed.
I slept in my own bed last night and spent about 6 hours back at the SCCA today being tested, probed and poked. They started photopheresis today and they've decided they wanna do it twice a week for the next 6 weeks. That works out to about 8 hours a week in addition to my regular duties there.
I'm currently at 61 doses per day (pills, cremes, proceses).
I weigh 141#. I haven't weighed 141# since before I entered HS.
Now I'm gonna take a nap.
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This blog is written by and about a guy with an incurable form of cancer. My purpose here isn't to say "woe is me", but to give insight about my thoughts, perspectives, and experiences throughout this adventure. My name is Andre. My partner's name is Ed. I intend to publish on a pretty regular basis here, but Ed might occasionally pop in with his thoughts too.
3 comments:
Should I shout "Yippee!" because you're still alive and kicking, or should I send Ed condolences? Glad to hear something from you, Andre, and of course, no matter how many of you there are, they are all getting Reiki from me....
Happy to see you up and around enough to post.
I thought I had the weight loss thing down pat. On the other hand, I'm not sure your method is to be recommended to any one.
I hope you let Ed have a nap too! Please don't let him drive to work until he has had a decent week's sleep! Good to see you posting again. You need some good home cooking and plenty of hugs!
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