28 days. Andre has been on the ventilator and in the ICU for 28 days.
Today is probably the lowest I've felt since the initial diagnosis, and my heart is close to breaking. I know I'll catch my bearing again to take better care of Andre and my other responsibilities but the road ahead just feels so much lonelier.
He had an MRI and a lumbar puncture two days ago to check if there is anything wrong with his nervous system that can explain his lack of lucidity and constant agitation. The results all came back negative. The only thing left to do clinically is to continue dialing down the sedative, pain meds and other medications that can cloud his mind, and hope that he comes out of it. And when he does, I'll be the first one he'll see.
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This blog is written by and about a guy with an incurable form of cancer. My purpose here isn't to say "woe is me", but to give insight about my thoughts, perspectives, and experiences throughout this adventure. My name is Andre. My partner's name is Ed. I intend to publish on a pretty regular basis here, but Ed might occasionally pop in with his thoughts too.
12 comments:
Hang in there Ed. I can't begin to imagine the frustration and sadness you must be going through, but know we are here for you.
I have no doubt in my mind that Andre will come around soon. He is too ornery not to.
Thanks Ron and Suzie. I appreciate your all your support.
I'm not far away, Ed, if you want someone to come and sit with you or just give you a listening ear... write back to me at the address I use to sign my messages. This is a very tough time you are going through and we want you to know you we are here... I did an extra long Reiki treatment on Andre tonight (long distance of course) and intend there is a good breakthrough.
Oh Ed - big hugs from afar! Thinking of you both as always.
Hang in there Ed!! and you know you can call me anytime. Both of you in my prayer everyday.
Ed, what a beautiful face he'll wake up to! Hang in there! You're in my prayers.
Lynn
Dear Ed, Yes, hang in there, I'm thinking of you and Andre. Dad has been in the hospital for the last 5 days, but it's only a tiny fraction of what you have been going through. I'm sending you strength, and hugs.
love Beverley
Ed, you two are always in my prayers. Jeremiah (new son) was so interested in the motorcycles. He thinks Andre's is really cool!
I cannot wait for him to meet Uncle Andre and Uncle Ed.
I hope all is going well with you two!
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