This is Ed. Andre was on hiatus from blogging because we were enjoying the lull in terms of his myeloma and transplant sequelae. But they reared their ugly heads again late last week.
Andre was told yesterday morning by his oncologist to check himself into the hospital. He's there now and I'm worried sick. I'm heading back down to Seattle tomorrow as soon as my morning meeting is finished.
All these came crashing down quickly. He was fine two weekends ago. He even went to his weekly appointment with his oncologist last Wednesday and was fine. Then suddenly, he woke up on Thursday morning with rashes/hives/bumps all over his body, especially on his fingers. His lips also started cracking and bleeding. It's so bad now that he can barely drink fluids, let alone eat. They put him back on high doses of immunosuppressants last Friday (the doc started tapering these a week-and-a-half ago) but these have not done anything. They suspect it's GVHD based on experience even though his skin biopsy from last Friday doesn't support this.
I just wanted to let you guys know in case you're wondering how he's been. I'll do my best to keep you posted.
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9 comments:
Thanks Ed, I'm sorry about this development. Perhaps it's just a dip in the roller coaster ride of his allo-transplant. I'm hoping he climbs out quickly. I'll be thinking positively on his behalf.
Thinking about you both. Keep us posted,
Thank you for the update Ed. Sorry to hear about the low, hopefully the meds will start kicking in soon.
~Kelsey
Ed, I hope you can feel the hugs from me and Ray.
Prayers are with you guys. I know how hard and how scary this is. Looking forward to hearing him fighting through this one, just like all the others!
Oh poo! Hugs to both - keep us posted!
Thanks for the update Ed. Still sending positive thoughts your way!
I'm praying for both of you. I know what it's like to have to stand by and not be able to do anything constructive.
Love you both.
Mom
Dear Ed and Andre -- I have been journeying across the country, and have been out of touch by computer. I will put you, Andre, on my Reiki list immediately and I intend that there is still a rabbit to be pulled out of some medical hat for the two of you.
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