Ed's attending a seminar in Seattle this week, so we've been spending a lot of time together. It's rather like being a real couple again.
The steroid taper has left me in the doldrums. Energy levels are sub-par and general malaise is up. I'm trying to get used to another "new normal".
Basically everything is OK here.
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This blog is written by and about a guy with an incurable form of cancer. My purpose here isn't to say "woe is me", but to give insight about my thoughts, perspectives, and experiences throughout this adventure. My name is Andre. My partner's name is Ed. I intend to publish on a pretty regular basis here, but Ed might occasionally pop in with his thoughts too.
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2008
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October
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- ....and counting toward the future.
- Tuesday's 10+ hour day.
- I guess it's been a week again.
- The complaints are becoming more frequent.
- Change your partner, do-si-do!
- A visit to "the office".
- Graft vs Host Disease (GVHD)Graft vs Tumor (GVT)
- So it's been a while
- SCCA Team Visit
- Monday night
- Interesting
- A bit of pain
- My tail
- A moderate day.
- Stressed.
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October
(15)
2 comments:
Time to be quiet together. That's a good thing too!
Sometimes, after many serial crises, it is hard to get adjusted to having what some might call a 'boring' - not-worth-talking-about - sane life. In a 12-step group they call this withdrawal from crisis mode and it can feel uncomfortable. I equate it to riding a cycle for several hours on rough road without stopping and when I get off, my hands are still vibrating, even though I'm not riding anymore. I am glad to hear you are adjusting - it gives me hope for the loved one I know who is going to be going through this tunnel soon.
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