I just got a call from the SCCA telling me my potassium levels were even lower today than they were yesterday or the day before. This, after buying a prescribed potassium supplement that wasn't covered by my insurance.... at a cost of $75 for a bunch of little packets of fruit flavored stuff.
So now I need to start using an infusion pump again 8 hours a day. Dammit! I hate that thing! They're also giving me a new scrip for some other basic mineral. More pills. More set-up time every day. More crap to carry around.
Somehow I have to time the pump somewhere between the other two infusions I have to give myself every day, manage my 4 seperate blocks of drug dosing, and let the SCCA use the lines and treat me somewhere in that schedule.
Yeah, I'm whining, but this is getting to be WORK.
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This blog is written by and about a guy with an incurable form of cancer. My purpose here isn't to say "woe is me", but to give insight about my thoughts, perspectives, and experiences throughout this adventure. My name is Andre. My partner's name is Ed. I intend to publish on a pretty regular basis here, but Ed might occasionally pop in with his thoughts too.
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2008
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July
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- More delays
- Frustrated
- About the delay (with other updates)
- Delay of game!
- I'm OK.
- There seems to be a problem
- Mixed bag
- Weekend info
- A simple sneeze
- The real deal
- Rough rough day.
- Food and weight
- Improvement
- Massive crash.
- Vegetable plate
- Exhausted
- Alternate wedding pic site.
- Wedding and pics.
- Rough couple of days.
- To answer:
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July
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2 comments:
I wish you luck, it's a pain in the rear. I take about 20 supplements a day. Be sure to take a good resveratrol supplement-very important for all cancers, but esp. mentioned often for MM.
the reason I'm annonymous is cause I can't ever get registered on google blogs. Too dumb, I guess. ha.
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