It would appear that going off dexamethasone early was a good thing to do. Seems the dex was hiding a couple of problems the SCCA thinks we should fix before we move forward with the mini-allo transplant.
Remember, dex was the drug that hid the intestinal flare-up that required removal of my sigmoid colon. Wonderful drug, dex!
This time it seems that my loss of weight, loss of appetite, and esophageal pain is caused by a serious flare-up of CMV (cytomegalovirus). It also suppressed the effects of a rapid spread of another viral affliction. Neither of these issues have ever shown their ugly heads before, but I'm told they're not unusual post transplant, owing to the patient's incredibly low immune response.
Anyway, they're treating me for CMV and they're considering surgery for the other issue.
Point is, treatment is making me feel better, and going off the dex early allowed us to find a couple of roadblocks that might have seriously impaired the mini-allo.
Listen to your body. Sometimes doctors can't hear that little voice inside you.
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2 comments:
Hang in there bud. I've missed your witty repartee and obvious observations. But you've obviously been busy.
Backmarker
So glad they found it NOW rather than later. Another term for the medical dictionary!
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